Hopefully This Will Make it Easier

Hello to you all on this fine November afternoon,

Zoe decided once again not to eat her bottle, very frustrating but less stressful since we can just get it to her via the tube and not worry about her nutrition. So while we patiently wait for her to finish eating I wanted to update you all on the recent going ons in Zoe's life.

The weight gain for Zoe is now noticeable to us, she has finally jumped up to the 6-9 months clothing and her arms are getting chubby once again. It is great to see and she is definitely wanting to do more with the extra calories, she enjoys bouncing, talking, and pushing more off of the ground.

If you recall, Phil and I decided to proceed with the G tube (the feeding tube directly to the stomach) it seemed to be the next step and we wanted to get it taken care of prior to the holidays rather than wait for an extra month or two. So next week if Zoe is healthy we will be going in for the minor surgery. Funny to consider it minor but for the surgeons it is and soon Zoe will be sporting a PEG (Percutaneous Endoscopic Gastrostomy) or a tube for three months and once the area has healed she will have a button. The nice thing about this is that once we no longer need it, the button will be removed and it will healed like a pierced ear.

We also had a check up yesterday with Zoe's neurologist. He was happy to see that she continues to be a boring case but we needed to monitor some tightness on her left leg. Thankfully we have physical therapy so with their help if it seems excessive we can take steps to make sure that she is flexible. We will have one more MRI next spring but after that he sees no need to keep it up. Praise God!

Well there goes the beep on the pump and Zoe is looking at me like she is ready to get back to playing. Maybe if I am lucky we will get a nap too.

God's blessings,

Kimberly