Awake for a Little Bit

Today, Zoe had an MRI and a check up with her neurologist. Apart from the crazy eating schedule Zoe did a great job, took her sedative well and was done in half an hour. The long part was waiting for Zoe to wake up from the sedative and then getting her to eat something.

We also met with the neurologist for a short visit, because Zoe really wasn't awake for the exam. The MRI shows that the brain is doing well and no cause for alarm. However, the doctor did notice that Zoe was more reflexive in one foot, possibly an issue of pressure in the brain. The positive side of this is that Zoe isn't showing any other "symptoms" of increased brain pressure so we will follow up in a month's time with the doctor again. If it is in fact an issue with built up brain pressure we will have to look into having a shunt put in. We are praying that this is not the case and that Zoe was just having a bad foot day.

Earlier in the week we met with the feeding therapist and another doctor to help assess the eating issues we have been dealing with. We have some more exercises to do and now have another test, a swallow study, in the next couple of weeks. This will help the doctor determine if we are in a phase or some kind of disconnect happening during the eating.

Thanks for your continued prayers and words of encouragement. We continue to trust and be hopeful about what the Lord has planned for us and Zoe.

She Doesn't Like Barium

We received the results of Zoe's upper GI and apart from a very messy effort on the technicians part, trying to get Zoe to take the barium, the results came out normal. Though this was expected, we are happy to officially hear it.

Zoe has been eating a bit better the past few days, we think the new medication she was on affected her appetite. We still plan on seeing a feeding therapist to see if we are dealing with behavioral issues or just typical baby stuff.

Zoe's MRI is set for next week, just a check up on the development and growth. We should know the results fairly quickly since we meet the Neurologist later in the day.

We, her parents, are inclined to think that she simply has a bit of attitude going on, as is on display in the above picture. I mean, honestly, who wouldn't be proud to sport such an obviously stylish number?

Just Doing a Little Workout on the Balance Ball

Oh the Specialists We See

Well I was hoping I would only post an adorable picture of Zoe today, but she decided that was not enough.

We have recently run into a little snag of Zoe not eating well. I am sure any of you as parents have experienced the battle of wills. Like many other babies, Zoe is quite determined to have her way, not unlike her mother, but because of her history we are concerned about the long term affects. So under the advisement of her Dr. we will be seeing a feeding specialist next week to get an evaluation of what is going on.

We are praying that with a few pointers and strategies from the therapist we can minimize the tears and get back on track.

At the very least, we can't say she didn't make life exciting.

The Theme Remains "Wait and See"

Today the weather was quite dreary and rainy and was a good day to say inside, but Zoe had a visit with the GI specialist at Children's Hospital and so it was an afternoon in Milwaukee.

The doctor felt that the irregularity in Zoe's past urine test was not something to be concerned about, but he was going to consult another specialist to just confirm. We are praying that the doctor's thoughts are correct.

We also discussed Zoe's spitting up. A lot of this is going to be waiting for Zoe to grow out of it, but we will be getting an upper GI x-ray to confirm that everything is where it should be. So again we will wait and see.

Zoe continues to do well with her milestones. In the past two weeks we have had visits from her physical and occupational therapist. Though we have a few things that she needs to work on, we do continue to see her progress in a timely fashion with her corrected age. We are very happy and excited about this.

Blessings to you all,

Phil & Kimberly

Ready for Church