Tuesday, March 30, 2010

Good Afternoon...


Just chillin at the doctors...
All 9lbs, 9oz of me.

Love,

Zoe

Thursday, March 25, 2010

Thursday, March 18, 2010

So, how was your week?

Hi-

Well this week of appointments have Zoe and I completely worn out. Monday's eye appointment went well, her blood vessels have fully matured and the scar tissue is disappearing. This means that her eyeballs are healthy. We will not know for a while whether there is loss of the left peripheral vision since that is more to do with the brain.

The EEG on Wednesday, apart from being an hour long, was good. Zoe tolerated the electrodes being stuck to her head and once she was attached she just curled up in my arms and fell asleep. The only bad part of the visit was the confusion on the blood tests. There seemed to be a misunderstanding on what the doctor ordered versus what Zoe could give up. Four hours later we finally got started and had to listen to her very loud cries as the nurses tried to find good veins. Poor thing was poked 5 times but I was more upset and distraught than she was, Phil will be handling blood work in the future. We won't know the results for a while, once the neurologist gets them I am sure we will get a call. So we keep praying since that is all we can do.

Zoe did go on her first walk today. First time she was out of the house for leisure. The weather was too nice to pass up and bundled in her 'Moby' we took a nice 20 minute jaunt through the neighborhood. She seemed to enjoy it so much she fell asleep immediately. Well had to get it in before the fore casted snow on Saturday.

Kimberly

Monday, March 8, 2010

An Overdue Update

Hello all,

It has been a couple of weeks since I have written but wanted to let you know how life in the Casmer home was.

We had quite a bit of an ordeal trying to get Zoe to eat and keep it down. With changes in formula, added medication, and rice cereal we hope to see Zoe gaining weight again. As of last week, Zoe was 7 lb & 3 oz and 20 inches, great numbers but according to the doctor not good enough. We hope with the recent diet changes we can see a drastic improvement at tomorrow's weigh in.

Zoe has a couple of important appointments coming up in the next few weeks. First, she has an eye appointment, to check if the vessels in her eyes have finally matured and hopefully were not damaged by the oxygen she was on while in the hospital. Second, Zoe will be going in for blood tests, urine tests, and an EEG to see what is going on with her brain. We are praying that things stabilize up there or heal. The tests will hopefully show what is currently going on, possible causes, and potential outcomes. All three are scary to think about so we continue to rely on the Lord.

Zoe's day to day seems great, when she is not spitting up like Old Faithful. We continue to exercise and do our therapy to keep her on track with her developmental milestones. March 11th will be her one month "corrected age" (age if she had been born to term). We hope to see things like, the startle reflex, gazing at faces for brief moments, and grasping on to fingers as a reflex.

We continue to be amazed by our little miracle and thankful for each day.

Kimberly